it has been a while but here we are again

So it has been a while since we "blogged" but I see it about to take off as a way to verbalize our fears of things. Let me back up about 6 months!

Jason has had lots of "issues in his short life". As a first time mom I really watch every thing. We had noticed that unlike so many children Jason was not picking up on simple things like talking, waiving bye bye, sign language, or eating to name a few.

So after pushing and pushing we finally got answers in the last few weeks! We had started speech therapy since Jason has 6 words at 21 months, was not really repeating much or talking, pointing or verbalizing other then ear piercing screams and a hissing noise similar to a cat's. Last week we had to have Jason scoped, low and behold he has/had sever cobblestones in his throat..... GERD also known as sever acid reflux. Hey I would not eat either if I had that that bad!!! We did this to see if there was any long term damage from him eating glass in January ( won't eat food but glass is OK???)

So we got back into Children's Hospital Seattle eating program! We went just yesterday and while we were there we kind of switched gears a little after talking to the PT specialist and watching Jason. They tested his neurological development. Ahhhhhhhhhhhhhhh, light bulbs were going off left right and center!

After 2 hours of talking playing and yes even Jason eating we had a answer, a name of what was going on and information on how to help our little prince!

Sensory Processing Disorder, ( kind of funny it is also called SPD, and those are Sacha's initials!) When I started to read the information they gave us, and research on line I was staring at my child's daily life and was amazed. Everything was there made sense down to Jason mainly walking on his tippy toes to covering his ears so often and freaking out in the sun light! We have a name we have a diagnosis we know where to get help!

While it is scary the long term effects that SPD can have, we have caught it fairly early, can get him into long term therapy and help him learn to live with what he can't "deal with" right now.



So........... this blog is now changed from The Dawes in Seattle to Jason's battle with SPD.

You can look it up, there is so much information on it out there, the more they are learning the more help we can get. Sacha and I will be in some wonderful support groups for parents of SPD kids, lots of reading and working one on one with our miracle child.

It is never easy to learn your child has needs that are not "normal" on a day to day basis. I honestly feel like it is not fair, but hey when is life fair. With all the problems we has in previous pregnancies and then having Jason, him being so early, and his illnesses the first 21 months, but hey, that is the life of a parent, no life is a bed of roses! As the therapist told us yesterday we have the Disney World of medical insurance, lets just skip it's a small world and get on the biggest and fastest roller coaster ride out there and hang on for dear life! What a ride this will be BUT the main thing, we are getting Jason the best of the best care!

So watch for Posts about or progress, our failures, our fears and our joys and mountains we have climbed! It will be a great learning experience and we are up for the challenge! Ya with us???