Monday, October 11, 2010
I've been gone to long
Sunday, May 2, 2010
You can't catch this...............
We truly see progress in Jason. He has a new fun thing to do, GET NAKED, anywhere he can as fast as he can! He has learned how to undo a zipper in a flash. We found Jason in his crib with NOTHING on and trust me we did not put him to bed that way. He was looking at us with the biggest smile like LOOK WHAT I CAN DO. He was sooooo proud! We were not so proud of what we found in his crib that was not in his diaper...... But he is learning and hey who can fault him for that. He is not potty trained and at 23 months(YIKES!) not may kids are yet............ It is times like those that we will look back on and laugh.
So my child screams loud, lots of kids do, my child does not talk much, so what, my child does not wave bye bye, hey he never wants you to leave, but my child loves and loves and loves. He is here to love us, kiss us and hug us, the rest will come along in time.... Hug your children, THEY LOVE IT AND GIVE IT BACK 10 FOLD
Monday, April 26, 2010
We are not alone!
We got some great news, Jason is "graduating" from eating therapy, and there is a space for him very close to our home for Sensory Integration therapy! YEAH!!! Jason has gained weight is eating a little better, he has his days, like today when all he wanted is milk and 2 bites from a fruit bar, but for the most part he is eating. He LOVES chicken teriyaki but really loves it from chop sticks! He still loves his french fries, but also loves crunchy things. He is not a big one on fruits and veggies but we have found ways to "hide" them in food or smoothies! Ahhh calories!
So here we are, we have learned a lot, have so much more to learn but one day at a time one step at a time one mistake at a time. Jason has progressed very well with his glasses, they are on about 90% of the time! Funny story, Jason and I were at a play date, he was happily playing on the jungle gym walking all over I see him going back and forth on the bridge to the slide, smiling and glasses on, the next trip across the bridge, NO GLASSES! I go running over ( They were expensive!) and a little boy had taken Jason's glasses off his face and was trying to put them on his own face! Jason was pulling at them like Hey those are mine!!! I was able to rescue the stolen glasses, clean them a bit and put them back on the correct child's face, Jason actually smiled when I put them back on like these are mine dude, back off! It was funny!
Pictures will be next time, it has been a long week, Sacha was on a business trip, and while i have taken pictures I have not edited or even downloaded them!
Happy reading and thanks again for the support, again my mantra, One Day at a time, One Step at a time, One Mistake at a time and we will be fine!!!
Saturday, April 17, 2010
Playing
Jason is now wearing them to the park, on play dates, and all over the house. In about 2 weeks we went from HECK NO I am not wearing those to hey ok let me try to put them on! Upside down and backwards but he is trying!
Jason is also learning to put his pants on ( and off) he loves it!
The only issue with this is he can take his pants off when we do not want him to and has done so once, while he was supposed to be sleeping, he removed his pants, his diaper and well I will let your imagination go to what he did with no diaper on, lets just say mommy and daddy had to clean his WHOLE CRIB!
So now Jason is getting more confident in things, he climbs the steps to the slide now, walks around the play area and goes down the slide all by himself! Sorry no pictures of this as I am having to catch him at the bottom of the slide! But he is helping in other ways we can take pictures of, he learned he can help daddy drive! See the comparison pictures of Jason helping Daddy drive right at 6 months to now at 22 months!
Sunday, April 11, 2010
The Blame Game
Sensory Processing Disorder is a real thing, it is not something to be "ignored", it makes children as young as Jason make the terrible 2's look like the world is ending over simple touch, smell, feel. Then add in the eye issues and it is all very confusing to a young person. Sacha and I are working on this as much as we can, it is a hard thing, it is hurtful to us both that our child is suffering from things he can not understand. Yes he displays simple toddler behaviour, and yes I run to him when he starts a melt down because we have seen first hand if they are not stopped what it can turn into. To most that see Jason "melt down" they think toddler or parenting issue or hey let that kid out of the bubble, let him fall, let him get hurt, let him get dirty. Trust me when I say we do all those things in the comfort of our own home where he knows where he is and all the things around him but in public when he starts to clinch his fist, turn bright red, and scream bloody murder, it is anything but pleasant and it ends up with Jason shaking all over and his mommy crying and begging for him to calm down. Crying is not the answer, it freaks him out more, but at times I can not stop the tears! I know I need to try harder at that but hey, we are all learning together about this.
Jason was a miracle from the start, we struggled to have him, many of you know this some of you do not, Jason should have had 6 siblings. Yes you read right, 6 pregnancies that failed for horrible reason's I will not go into now because frankly this blog is about Jason not the "what could have been", but I bring it up because of this. I can say Sacha and I are angry! We are angry that we struggled, we lost so much, we fought so hard when so many told us, just stop trying, adopt, there are so many children who need a good home. I was told I should understand that being adopted myself, and we, Sacha and I agree with that and had always planned on adopting once we had our own child. We still think about it now since we can not have any more children of our own. Then along came our Washington baby. Wow, what a surprise, and he was great! Growing like he should, no problems with Downs Syndrome like had been feared from past history, he was great. He came early, to early, and we were warned there may be issues! That is why we are angry, we thought we had suffered enough, we thought, hey maybe just maybe we will have a easy baby just cause of all the past issues. Nope just the opposite, sick a lot, late to roll over, late to crawl, late to walk, and now at 22 months and not talking well, you know, late to talking. We both wonder WHY??? WHY is this happening? How do we deal with it? What help can we get Jason? and WHY? It seems so unfair, so upsetting, so wrong!!! But we love this child, so very much, we love him when at 22 months he still does not sleep through the night all the time, when at 22 months he can not always feed himself or eat at all. When at 22 months he would rather crawl around the house then walk, when at 22 months he can not talk to us and even say hi mommy. We love him, not because we have to, but because in this world there was not a more wanted baby, a more needed child, and not a more prayed for child to come into our lives.
So no blame is given with this disorder! None what so ever to anyone, it is what it is. Sacha and I ask you all to love Jason for who he is, love him the way he is and to support us as we learn about this disorder. SPD comes in many forms, some are milder then others, some are more severe, and some is related to Autism. Our child so far is not related to Autism, praise the Lord, could it go there? Yes we are told it could, will it? No way of knowing yet, Jason is to young to know for sure. Does it matter? In some way's yes, for Jason's sake, but in the eye's of those who care for Jason no it should not, he is still the beautiful boy from Bothell Washington that everyone oooooh'd and ahhhhh'd over. We hope even though he is not the cute baby stage anymore you all still ooooooh and ahhhh over him like his parents do!
Thanks,
a heartbroken set of adoring parents
Friday, April 9, 2010
Darn I am cute............ or so I keep being told
Jason also ventured out with his mommy to a play date today with 6 other kids from infant to toddler to beyond preschool. Jason is not the best "sharer" in the world but he is getting better! Where we went was great, nice safe play room in someones house with every toy known to man and the best thing of all, HORSES! I have not seen Jason light up like that in a LONG LONG time! He kept squealing Dooogies, no honey not doggies, horsie! But he was squirming in my arms, and reaching out to them. It was suggested that we look into therapy sessions with horses, it really helps little people with some sensory issues and developmental delays. I had heard that in the past but I was a) in denial that my son had "issues" and developmental delays ( yes his mommy is a little nutty at times) and b) thought it may be to much for him at such a young age, ( mommy fear he may get hurt, got to burst the bubble he lives in sometime!) so we are going to look into it! I mean he was excited to see the horses run and play!
Now my wonder boy is sleeping off all the afternoon excitement. While mommy blogs and does other around the house things.
Slowly we as a family are starting to come around and understand just what Sensory Processing Disorder is, how to deal with it and understand it is OK for us to say we have a "special" child. Every child is special, every person has special qualities but not every child is as special as ours is. So if one day you see us in a restaurant, and our wonder boy is screaming a blood curdling scream while clinching his fists and turning red, please know it is not bad parenting, or lack of discipline, it is "special needs" showing through. We are working hard on the screams, the fist pumping, and the frustration Jason is having. We are getting better at making him watch us and watch the simple sign language we are using to help Jason communicate. So if you see us, hey. stop by, say hi, tell Jason how cute he is in his glasses, he can never seem to get enough flirting or attention and know that as parents we are doing the best that we can. We need the love, we need the support and we know the screams are loud! TRUST US! We are a lot closer to them then you are when they go off! Any suggestions are taken and applied if we can!
Thank you for continuing to read about Jason and his cuteness, his challenges he is facing and letting his parents get their hurt, confusion and frustrations out via this blog! It really does help the one who is behind the keyboard which for the most part is his Mommy but Daddy helps too!
Happy weekend to you all and remember once again you may hear a screaming child no matter where you are, the parents for the most part are more frustrated and mortified with the screams then you are or you think they are, if they are decent parents at all!
Tuesday, April 6, 2010
tramatic day for Jason and his Parents
Friday, April 2, 2010
Glasses???!!!
Wednesday, March 31, 2010
We got in!
On a interesting note we are thinking Jason is ready to start potty training, he is very interested in watching himself go to the bathroom of late. So we are getting him a "big boy" potty to start this new phase of life, this could be INTERESTING! Jason will be the ripe old age of 22 months on Friday, I know many boys are late bloomers in talking, potty training, and motor skills, we will have to see where this takes us!
Wednesday, March 24, 2010
Feeding therapy..... or playing??
Tuesday, March 16, 2010
Day one Feeding Therapy
Today he is showing signs of either a cold coming on or allergies, needless to say his nose is running!
BUT we have finished his play room ( well about 95%) I need to change the valance and put his pictures up. We are taking pictures of his favorite things and putting them down low so since he is not talking he can show us what he wants or we can show him Callie or Hana for "doggie", or Mommy or Daddy, or chair, sippy cup, etc. Any suggestions on what to put pi cures up of?
Sunday, March 14, 2010
Friday, March 12, 2010
it has been a while but here we are again
Jason has had lots of "issues in his short life". As a first time mom I really watch every thing. We had noticed that unlike so many children Jason was not picking up on simple things like talking, waiving bye bye, sign language, or eating to name a few.
So after pushing and pushing we finally got answers in the last few weeks! We had started speech therapy since Jason has 6 words at 21 months, was not really repeating much or talking, pointing or verbalizing other then ear piercing screams and a hissing noise similar to a cat's. Last week we had to have Jason scoped, low and behold he has/had sever cobblestones in his throat..... GERD also known as sever acid reflux. Hey I would not eat either if I had that that bad!!! We did this to see if there was any long term damage from him eating glass in January ( won't eat food but glass is OK???)
So we got back into Children's Hospital Seattle eating program! We went just yesterday and while we were there we kind of switched gears a little after talking to the PT specialist and watching Jason. They tested his neurological development. Ahhhhhhhhhhhhhhh, light bulbs were going off left right and center!
After 2 hours of talking playing and yes even Jason eating we had a answer, a name of what was going on and information on how to help our little prince!
Sensory Processing Disorder, ( kind of funny it is also called SPD, and those are Sacha's initials!) When I started to read the information they gave us, and research on line I was staring at my child's daily life and was amazed. Everything was there made sense down to Jason mainly walking on his tippy toes to covering his ears so often and freaking out in the sun light! We have a name we have a diagnosis we know where to get help!
While it is scary the long term effects that SPD can have, we have caught it fairly early, can get him into long term therapy and help him learn to live with what he can't "deal with" right now.
So........... this blog is now changed from The Dawes in Seattle to Jason's battle with SPD.
You can look it up, there is so much information on it out there, the more they are learning the more help we can get. Sacha and I will be in some wonderful support groups for parents of SPD kids, lots of reading and working one on one with our miracle child.
It is never easy to learn your child has needs that are not "normal" on a day to day basis. I honestly feel like it is not fair, but hey when is life fair. With all the problems we has in previous pregnancies and then having Jason, him being so early, and his illnesses the first 21 months, but hey, that is the life of a parent, no life is a bed of roses! As the therapist told us yesterday we have the Disney World of medical insurance, lets just skip it's a small world and get on the biggest and fastest roller coaster ride out there and hang on for dear life! What a ride this will be BUT the main thing, we are getting Jason the best of the best care!
So watch for Posts about or progress, our failures, our fears and our joys and mountains we have climbed! It will be a great learning experience and we are up for the challenge! Ya with us???
Sunday, March 29, 2009
Life in March
March was and still is fun! It has been very weird in the weather department though! We have had sun and warm days, then snow then rain and hail then more sun then more snow and well you get it! Here is a picture of the snow one day! Mommy and I were at lunch with my good buddy Jake and Mommy's friend Cristina and it started to snow a little, when we left the house it was raining but she knew the snow was coming but not like this!
I am chilling on a sunny day with my cool buddy shades! I am rockin in them!
I am not sure what a birthday means but I know it is important and my friend Jake ( the same buddy I had lunch with in the snow) had one! He turned 1 and everyone made a big deal about it! I liked his party cause I guess we all get one and he got LOTS of good presents, from books to toys to a wagon that Mommy and Daddy and I got him! Then he got cake, I know he liked cake! I had fun playing at his house that day and I will tell you a secret mommy let me taste cake, it was GOOD!!!
Here I am playing at Jake's! I was having a good time with all my friends!
See Jake's pile of presents? YIPPEE for Jake!
Jake got this cool train whistle and train hat and bandanna and train too! The whistle made some cool sounds and he was sharing with daddy to make the noise from it! Way to go Jake!
Look at Jake's cake!
All that cake and playing wore me out!
Tuesday, March 3, 2009
I am 9 months old!
my head is 44.5 cm around!
Getting messier!Messy!!!
then there are Popsicles!
These things are COLD
Nope to cold I do not like it..........or am I crying cause it is slow being delivered to me?
Yep I like them! I just had to get used to them being cold!
So now you are up to date on me and my life with my mommy and daddy! I love them very much and I know they love me!!!
Hope you like my blog...........please feel free to leave me a comment or a message! I love to hear from my family and friends who read about me!
Kisses!
Jason
Daddy had a birthday!
Then daddy got to open his presents! I love to help!
Then we had some of Daddy's friends over to help us celebrate!
Well that is just mommy and daddy but there were friends there too!
See there is Jake and his mommy and daddy! They all played a video game after I went to bed!
Daddy showing a present from mommy, he is so silly!
Happy birthday daddy! next year I want a piece of cake!
I love you!
I got sick!!!
friends I have made
Here are a few playdates!
My buddy Evan trying to walk already!
Abby and her mommy
My friend Natalie and her mommy! we do not see her often but it is fun when we do!
Yeah yeah I was napping!
Girls every where!!!
then I had a play date with mommy, daddy and Mrs Christina and Mr Jimmy and my buddy Jake, we went to Pikes Market on a Sunday it was FUN!
Mrs Christina getting ready to go!
Daddy and I with a cool sunset!
Jake and his mommy and daddy!